(If you are considering kidney donation, and need more info go to the "DonateAKidney" tab of this website)
kidney are encouraged to have family members tested first - children, siblings, parents, other relatives, and possibly
friends and other acquaintances.
of a kidney and can't add anyone at this time to this list! It breaks my heart to tell you this!!! Unfortunately, when anyone
gets in touch with me regarding a kidney - at least 99.9% of the time it is from people who NEED a kidney - not from anyone
who wants to donate. I have other very desperate people who are in need of a kidney and it is so heartbreaking I can't help
all!!! So - sorry I can't help anyone new, right now. )-: I am flooded with e-mails and please forgive me if I don't get back to
you on time or at all. )-:
would like to speak to other people as myself who has already donated a kidney, please have them get in touch
with me. I would be happy to speak to them. Click on the "contact us" tab above.
to someone else through the National Kidney Registry the National Kidney Registry will try and find someone else
to donate a kidney to you or your loved one. They have a large database of potential kidney donors and will only try to find
you someone else, if you have someone who was not a match for you and willing to donate a kidney to someone else in their
database. They will not have the person who was not a match for you donate a kidney to someone else, unless they first find
someone who is a match for you and will donate a kidney to you. This is a great organization that will greatly increase your
chances of finding a match. For more information on the National Kidney Registry, check out their website: www.
kidneyregistry.org. There are other organizations as well that may be somewhat similar. For a list of organizations see
below. Or if you would like more in depth information, and to find out about which hospitals have been involved with kidney
donor exchange programs, check the National Kidney Foundation website - www.kidney.
If you have had family members, friends tested and were not a match or others who have been ruled out to donate
a kidney for health reasons, you can contact me as well and I will add you or that person in need of a kidney to my list.
However, please note: I have though many people on my list of people in need of a kidney and unfortunately may not be able to
help out you or that person in need of a kidney in the near future, depending on the blood type of the person in need of a
I am hoping though this website will encourage others to donate a kidney so more lives can be saved!
Donation." This article states: "Get-togethers with a kidney disease patient's family and friends can improve their willingness to consider
donation., The findings indicate that group-education of patients' relatives and friends is an effective way to help alleviate the organ
shortage and increase living donations. To read this must read article, click here.
* * * *
Artificial Kidney May One Day Replace Dialysis!
development that one day could eliminate the need for dialysis. To read the article, "UCSF Unveils Model For Implantable Artificial
Kidney To Replace Dialysis", click here.
*A woman needed a kidney, but had 2 problems. One was her husband wasn't her blood type. He was blood type B and she was
blood type O. And two, she had a hyperactive immune system, lupus, which would attack and destroy the donor tissue. However, her
husband was able to successfully donate a kidney to her. To read their story, "Getting Her Body To Accept His Kidney." from the
website, Asia One. For the article, click here.
* A Transplant Matching System has increased patients' chances twofold. To read this article, "Doubling up on Kidney
Donations, from the website Star Tribune, click here.
and World Report, "Exercise Extends Life of Kidney Patients". Click here for the article. Please note: Before anyone
starts an exercise program, they should consult with their doctor.
* A screening test that measure's whether a patient's heart is healthy enough for a kidney transplant, is not as dangerous as
once thought. To read this article "Heart Test Found Safe For Pre-Transplant Kidney Patients" from the website, Doctors Guide,
function: "Best Post-Transplant Drug Regimen Identified for People with New Kidneys", from the website, Newswise. For
the article, click here
HIGH ANTIBODY LEVELS AND ARE IN NEED OF A KIDNEY
* New desensitization treatment, in particular for those who have high antibodies and have a difficult time finding a match.
More information on this article, "New Hope For Patients Who Need Kidney Transplants", from the Los Angeles Times,
website. For the article, click here. For a similar aritcle with audio - click here:
Have you or someone you know who needs a kidney, had a previous kidney transplant and have a problem finding a match
because of your high antibody levels? An important article to read about advances about this problem that was in the New
York Times a while back. This article talks about drugs to lower antibody levels to expand kidney transplants. The
treatment may be possibly a good alternative to plasmapherisis and is called IVIG. (Intravenous immunoglobin.) To read the
article that talks about this, click on "Advances Expand Kidney Transplants" Website: www.nytimes.com
* * * *
A person who had a kidney transplant 42 years ago - this person's transplanted kidney is still functioning! See article, with this
link for this article, above this page. For the latest statistics on lasting kidney transplants, click on "Milestones in Transplantation
Data". Website: www.unos.org. Also, check out the article, "What Is The Longest A Recipient Has Survived With A Kidney
Transplant?" Website: ihatedialysis.com
from a cadaver, and that kidney lasted him for 33 years, which is also considered very good.
Harvey Brown, received a life-saving kidney transplant 30 years ago from his brother and he is still doing great! To read
this latest article, click on "A New Lease On Life" - Jerusalem Post, January 15, 2009. Website: www.jpost.com.
Information on Dialysis treatments:
Home Dialysis - "At Home Dialysis Gives Kidney Patients Good Results and Flexibility". Click here for the article and video.
Better Dialysis - New study: In a one-year study of 224 kidney disease patients, those who received eight hours of dialysis
overnight (while sleeping) had a 78% lower death rate than those who received conventional dialysis (four hours, three days
weekly). Theory: Overnight dialysis patients are less likely to experience blood pressure drops, which can lead to complications.
As reported by: Ercan Ok, professor of internal medicine and nephrology, Ege University Hospital, Izmir, Turkey. Click here for the
article. From Bottom Line Health, March 2009 issue.
"Nighttime Dialysis Improves Lives Of Some Kidney Patients" - Gazette.com. Click here for the article.
"Sleeping Through Dialysis: No Nightmare For Kidney Patients" - ScienceDaily.com.
Click here for the article
"Overnight Dialysis A Good Option For Dialysis Patients" - Inditop.com. Click here for the article.
And - great hope for the future of dialysis! Check out this ground-breaking article,
"Wearable Kidney May One Day Replace Dialysis" - U.S. News & World Report. Click here for the article.
* * * *
Alternative Treatment Options, such as Holistic - Homeopathic, and Acupuncture
There is an article that mentioned that those who have PKD (Polycystic Kidney Disease) may be helped by Flaxseed oil, For this
article from the Natural Health Institute, "Flaxseed Found To Help Kidney Health", click here. HOWEVER.....
There are people out there that are opting for an alternative, perhaps holistic treatment to try to cure their kidney disease, hoping
such treatment would cure them and result in their no longer being in need of a kidney
This can be very dangerous and can worsen their condition.
Kidney Patients' Levels of Toxic Phosphorus." Before anyone switches to a vegetarian diet, please discuss this with your doctor.
Generally, a vegetarian diet is the way to go for a large percentage of the population, but there may be exceptions, particularly for those
who have certain diseases like kidney disease. For those who are on dialysis, their diet is very restricted and limited, as those who are
on dialysis know.
In general, always consult with a health care professional before changing your diet or before starting any alternative
PAIRED/EXCHANGE KIDNEY SWAP PROGRAMS:
VIDEO ON THE LARGEST KIDNEY SWAP IN HISTORY -
(all from website, msnbc.com)
ARTICLES/VIDEO PERTAINING TO SWAPS
SWAPS, WAY TO GO! This lovely woman gets a kidney through a Swap - now helping others!
Amanda Nathan of San Antonio, Texas recently hosted strangers from out of town at her home. A woman from Wisconsin who was
in need of a kidney needed a place to stay in San Antonio, as well as her friend who accompanied her, so she can be near the San
Antonio hospital where she was going to register to receive a kidney through a swap.
kidney through a 3 way swap at the Methodist Specialty and Transplant Hospital in San Antonio. Her friend who wasn't a match for
her, donated a kidney to someone else in the swap, and in return someone donated a kidney to her! Amanda is doing great. Amanda
had previous transplants and her antibodies was high, and as a result and it was difficult for her to find someone who was a match for
her. Swapping is the way to go for those who don't have anyone who is a match for them!
Amanda very highly recommends this hospital for those who want to join a swap program. Great story and video about this hospital
that did over 50 swaps by now! To see article/video about this hospital's swap program and about the doctor in charge of the swaps
there, click on "Dr. Adam Bingaman, Kidney Matchmaker.
By the way, Amanda is now a volunteer at this hospital, too!
Hi everyone, Trish is in recovery following her under-four-hour kidney transplant surgery tonight at the University of Toledo Medical
Center. Surgeon was Dr. Michael Rees, founder of the Alliance for Paired Donation (paireddonation.org) and the donor was a 41 year
old woman from New Jersey whose husband received a transplant a couple weeks ago from another anonymous altruistic donor. The
chain will continue when a match is found for Aunt Marcia, who, as Mom's "donor" through the paired matching program, will donate to
someone else in need as a way to keep the "pay it forward" matching program going. After the kidney was removed from the donor, it
flew to Detroit where it was transported to Toledo via i-75 - where it was stuck in a stop-and-go traffic jam. After being on ice for 11.5
hours it was transplanted into Trish where it is now working well to rid her body of the toxins that have been building up for years.
They've given her a steroid to assist with immunosuppression and should make her feel like a rockstar tomorrow but recovery will be a
process - will learn all about anti-rejection drugs she'll need to take for the rest of her life tomorrow. Thank you all for the support, the
encouragement, thoughts/prayers/well wishes/good vibes and all of it. We are so fortunate to have such wonderful friends and family.
* * * *
Best Hospitals for Kidney Disease - US News & World Report article - click here. Website: www.usnews.com
and/or doctors, rather than go by any "Best Hospitals" list. My personal experience and from what I hear from others - is that doctors and
or hospitals that are on "Best" lists aren't necessarily always the best. Also - sometimes you can get more personal attention and just as
good doctors from smaller hospitals as well. Personal recommendation from others who have a similar health situation to you and who
have been happy with their doctor and/or hospital, can be the "best" recommendation.
Need a Recommendation for a Hospital for a Kidney Transplant?
I know many people who have had kidney transplants. I can possibly put you in touch with some of these people. Below is a listing of
hospitals of people I know of who have had kidney transplants. Next to each hospital is a listing of the number of people whom I know
of who have had kidney transplants at that particular hospital.
* * * *
St. Vincents Medical Center,- Los Angeles (1)
Cedars Sinai Medical Center - Los Angeles (3)
Scripps Memorial Hospital - San Diego (2)
UCLA - Los Angeles (2)
Georgetown University Medical Center - Washington (2)
Jackson Memorial Hospital - Miami Beach (5)
John Hopkins - Baltimore (2)
University of Maryland Medical Center - Baltimore (2)
Massachussets General Hospital (2)
University of Minnesota Medical Center, Fairview - Minneapolis (2)
Mayo Clinic - Rochester (1)
St. Barnabas -West Orange - (2)
Montefiore Medical Center - Bronx (10+)
Westchester Medical Center - Valhalla, NY (4)
New York Presbytarian - Columbia Presbytarian - New York City (10+)
New York Presbytarian - Weill - Cornell Medical Center - New York City (10+)
SUNY/Downstate Medical Center - Brooklyn, NY (2)
St. Luke's Roosevelt Hospital Center - New York City (1)
NYU Medical Center - New York City (1)
Mt. Sinai Medical Center (4)
Wake-Forest University Baptist Medical Center - Winston Salem,(5)
University of Ohio - Toledo (1)
Einstein Medical Center - Philadelphia (1)
Medical University of South Carolina - Charleston (1)
Methodist Specialty & Transplant Hospital - San Antonio (1)
University of Utah Medical Center, Salt Lake City (1)
Beilinson/Rabin Medical Center - Petach Tikva (11)
Ichelov Medical Center - Petach Tikva (1)
I had donated a kidney at Montefiore Medical Center, in New York. I know many people who had a kidney transplant at this hospital. Dr.
Stuart Greenstein, is Professor of Surgery, Kidney Transplant Surgeon at this hospital. Everyone I know who has had a kidney
transplant done by him, has only glowing words to say about this extraordinary, beloved surgeon. I myself have not met such a special
and caring doctor in my life. People have even come from overseas to have a kidney transplant done by him. To give you an example of
what a special person he is, even when he goes on vacation to Israel, for example, he goes to visit his ex-patients! What other doctor
visits ex-patients when they are on vacation? He also gives advise to others in need of a kidney, even if they don't intend to use him as a
doctor! I can put you in touch with people who have had kidney transplants done by him. I am sure whomever you speak to, they will
highly recommend Dr. Greenstein to be your kidney transplant surgeon. Dr. Greenstein was nominated as a Jewish Community Hero. To
read about his nomination, click here. Also, Pat McDonough is one of the kidney transplant coordinators at this hospital. She herself had
donated a kidney! She is great with both potential donors and people who are in need of a kidney. She is a very informative and caring
person! They both helped make my kidney donation at that hospital an even greater experience! Their hospital's website is: www.
P.S. I wrote a letter to their hospital, Montefiore Medical Center, praising them. Click here to see a copy of that letter.
* * * * *
After having a 2nd kidney transplant, a young woman decided she wanted to give back and help others who are in need of a kidney.
So she decided to go to nursing school and recently graduated and plans on becoming a nurse at a dialysis center! Read her amazing
story, click on "Two Kidney Transplants Led Graduate To Nursing." Website: www.boston.com
Blood Donation Drive? Bone Marrow Drive?
How about a Kidney Drive!
May be a good idea, particularly for those who don't have anyone to test for them or no one to put in a kidney swap at their
So, this can be great - to have a kidney drive (or a kidney donor drive), however, can be costly and most hospitals may not be willing to
cover the expense of testing people who are considering kidney donation or may not want to cooperate at all! But it may be worth trying
and contacting a local hospital of a person who is in need of a kidney. Also, if you hear of a community blood drive or bone marrow drive,
find out from the organizers if they would be willing to do a kidney drive, in conjunction. Obtaining a booth for a Kidney Drive at a Health
Fair or some other events where one can rent a booth, can be another option.
If a local Kidney Drive, can be done, suggestions:
1. Someone from a lab, or nurse, would need to be there to draw blood from those considering kidney donation.
2. Have a Kidney Transplant Surgeon and/or Kidney Transplant Coordinator on hand talk, to those considering kidney donation.
3. Have people who have already donated a kidney, attend, so they can speak to others who are considering kidney donation.
4. Put out Information, flyers, booklets about kidney donation.
5. Show a video/documentary about kidney donation.
6. Have a "Kidney Donors" poster listing of those who have already donated a kidney. ("Kidney Donors Honor Roll" listing - perhaps,
similar to one on the home page of this website.)
7. If possible have a raffle for a valuable prize, to draw people to such an event.
8. Offer refreshments. And healthy ones!
8. Announce this event in community listings of local newspapers, which are usually free. If you can afford an ad, even better!
9. See if a local newspaper or other media outlet would be willing to do a story on the person who is in need of a kidney or at least
announce in their newspaper, or other media outlet about the event, other than just a community listing.
* Important note: If putting an ad in a newspaper for a Kidney Drive, perhaps mention in the ad that in order for people to donate a
kidney, one needs to be in good health. And perhaps mention also a BMI (Body Mass Index) limit. Check with your transplant hospital to
see what their BMI limit is for potential donors. Some hospitals may say 30, others may say 35. Note though: Someone with a BMI of 30
or over is considered obese and this is considered by some a higher risk for complications after kidney donation. An obese person, as is,
is a higher risk for many diseases. Also, find out from your local hospital, the age range for someone who wants to donate a kidney.
Many hospitals may differ on this - that's why it is good to find out.
General Articles/News Stories:
|Great, 3 part multimedia series, from the Star Ledger, New Jersey
"Kidney Donation 'Chain of Life' : A Gift of Hope Unfolds"
- plus their great video -
"Chain of Life - Kidney Transplant Chain Helps Six Patients"
For articles and video. Click here:
|Woman receives kidney from a cadaver - still working after 42 years!
To read this story, click here: "Britian's Longest Surviving Kidney Transplant Patient Celebrates Her 42nd Year"
|- GREAT VIDEO -
For video information on
Kidney Swaps/ Paired Exchanges
see the video:
"Kidney Swap Helps Overcome Donor Shortage"
To view the video, click hereo
TO REPLACE DIALYSIS! -
"UCSF Unveils Model For
Implantable Artificial Kidney
To Replace Dialysis"
For article, click here
|Man from the USA who received a transplant 40 years ago from a living donor -doing great!
To read his story, click here: "Medical Miracle: Kidney Transplant Has Lasted 40 Years And Going Strong"
|Are you DISABLED because of your Kidney Disease?
The Social Security Administration (SSA) has two types of benefits available for people disabled by illness. Kidney transplants
could potentially qualify you for either one. For more information, click here